Ask the Experts - Get answers from experts about issues related to immune-mediated diseases?
Take Action - Everyone can advocate for healthcare treatment and reimbursement issues.
Share Your Story - Help others by sharing your experience with chronic illness!
PI Parents: We’re No Different
Parents with a primary immune deficiency (PI) face certain challenges that other parents take in stride. Last week, I was at work when I got the dreaded call... [more]
Popcorn Tuesdays
Last night, my son came in the living room and said, “I love Tuesdays because we get to watch something fun and we always have popcorn,”... [more]
Abbie Cornett is the Patient Advocate for IG Living. A former Omaha police officer, Abbie was elected as a representative in the Nebraska state legislature in 2004. Abbie served as the Chair of the Revenue Committee, and is former Chair of the Business and Labor Committee. During her tenure as a legislator, she also served as President and Executive Director for the Alliance for BioTherapeutics, whose mission was to increase access to lifesaving therapies for patients and their families who rely on biotherapeutics, by serving as an educational resource and advocacy group.
To contact Abbie, please send your email to acornett@igliving.com or you can call (800) 843-7477, ext 1366.
National Committee for Quality Assurance Provides free access to detailed report cards on health plans, clinical performance, member satisfaction, access to care and overall quality on its Health Plan Report Cards Online
National Organization for Rare Diseases Provides links to numerous other organizations that have disease-specific support groups and virtual communities for patients and caregivers
National Infusion Center Association (NICA) Established in 2010 as a 501(c)(3) non-profit organization formed to improve patient access to intravenous and injectable medications
Band-aides and Blackboards Started by a nurse working on her dissertation; focuses on children with chronic illness
Immunoglobulin (Ig) Therapy Provides clinicians and patients with information that can assist them in optimizing immune globulin therapy
Patient Services Incorporated A non-profit organization specializing in health insurance premium, pharmacy co-payment and co-payment waiver assistance for people with chronic illnesses
Patient Advocate Foundation A non-profit foundation seeking to ensure patient access to care, maintenance of employment and financial stability
WebMD A handy medical reference that helps consumers take an active role in managing their health by providing objective healthcare and lifestyle information
KidsHealth.org Suggestions for how to deal with the medical and emotional impact of caring for an ill child
