Support Groups: Helping Children & Families of Various Childhood Diseases


	Patient Advocacy

	Ask the Experts - Get answers from experts about issues related to immune-mediated diseases? Take Action - Everyone can advocate for healthcare treatment and reimbursement issues. Share Your Story - Help others by sharing your experience with chronic illness!

	PI Parents: We’re No Different Parents with a primary immune deficiency (PI) face certain challenges that other parents take in stride. Last week, I was at work when I got the dreaded call... [more] Popcorn Tuesdays Last night, my son came in the living room and said, “I love Tuesdays because we get to watch something fun and we always have popcorn,”... [more]

For parents looking to start a support group or for information regarding their child’s illness, Abbie Cornett, our patient advocate, can guide you through the process of creating a community support group. She can also help you develop a strategy to advocate for healthcare treatment or reimbursement issues.

Support Groups

Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS)/Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus (PANDAS) PANDAS Network Support Groups PANDAS/PITAND/PANS Advocacy & Support PANDAS Resource Network Support Groups PANDAS Patient Support Illinois Houston Area PANDAS Support Group Joshua’s Missing Peace
Primary Immunodeficiency Disease (PI) IDF Common Ground IDF Discussion Forum IDF Friends Jeffrey Modell Foundation Message Board New England Primary Immunodeficiency Network Immune Thrombocytopenia Immune Thrombocytopenia (Idiopathic Thrombocytopenic Purpura) Platelet Disorder Support Association	Kawasaki Disease (KD) Kawasaki Support Group - UK A Kawasaki Heart Guillain-Barré Syndrome (GBS) GBS Support Group Mitochondrial Disease United Mitochondrial Disease Foundation MitoAction

Patient Advocacy

PI Parents: We’re No Different

Popcorn Tuesdays

Support Groups

Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS)/Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus (PANDAS)

Primary Immunodeficiency Disease (PI)

Immune Thrombocytopenia

Kawasaki Disease (KD)

Guillain-Barré Syndrome (GBS)

Mitochondrial Disease